The bus that Mikee takes has changed so he has a new driver and assistant and a new route, but he doesn’t mind at all or at least he’s never complained about it… Being that he is non-verbal, that’s not that surprising, but as he can be quite vocal at times he’s not expressed any displeasure. And that’s just it, the sweet boy is in a constant state of content(edness?) except for maybe when he’s ready to eat. Then he gets worked up and very vocal, especially while I’m still preparing his meals or while it’s cooling. As content as he may be, he can certainly be impatient for dinner!
I am sorry that I’m not able atthe moment to recall all the great annecdotes and analogies that come to my mind during the average day that I want to put up here. Mostnof the time they have to do with day to day struggles in my life and Michaels life and how they seem analogous iny mind to the larger frame of reference of our over challenges in our lives as a whole and in the world and the times on which we live. Give me some time and I promise I’ll be able to give you some good examples. Maybe when I finish upgrading my mac. I guess if I miss posting on my iPhone I can do so at any time I’m inspired. I hope you all are having a wonderful day!
Tag Archives: Families with Disabled Children
Still via iphone
I’m back on the iPhone, I’ve has bad luck replacing the drive in my mac, but really its a blessing because it has forced me to simplify. It’s a strait forward app that I’m using and that’s why things will be looking pretty basic here for a while. Mikees doing well he wanted to go to bed really early. I think he’s having a little growth spurt. He certainly has been a lot more active and curious lately and getting stronger and bigger. I’m so grateful for his and my good health! Here’s to yours!
Iphone blogging
I’ve resorted to my iPhone for updates while my mac undergoes maintenance and new drive installation. It been challenging lately to keep up with everything, meaning all the details of a life raising a special needs child as a single grandparent as you might imagine. Our circumstances are specific to us but there are others living everyday who struggle and suffer with disabilites and life circumstances that are far more desperate than ours. I hope that this blog will be an inspiration to them and others while educating all of us about people and families with disabilities.
Time Management
It’s going to take a while till I get to the knee of the learning curve, but I’ve worked on some things that I think will help tell our story.
Figuring it out…
I’m not a blogger… but I can give it shot! I’ve always had a lot to say and at this point it’s about to erupt out of me in some way or another, and here’s to my concious effort to finding this an effective and healthy means of expression, and a document worthy of your time, the reader, and further I would hope that we provide you with some information, some inspiration, some food for thought, and some new thing to do or direction to go in for the collective good. I have yet to developed a mission statement for this project… anyone up for helping me with some keywords?
Hello, Indeed!
I’m intending to document the progress of my grandson Michaels’ growth and development with his condition, known as Agenesis of the Corpus Callosum: http://en.wikipedia.org/wiki/Agenesis_of_the_corpus_callosum
He is developmentally disabled and is living with me in St. Augustine, Fl.
I have quite a bit of media to incorporate into the blog and this media will eventually be part of a short documentary that I am working on called “The Boy with Two Brains”
Two Brains 