Originally, I imagined making an instructional video about Michael, his condition and the type of care he receives so if, for some reason, I was unable to care for him, at least their would be some idea of the nuances of his routine. I soon figured out that a blog would give me time to chronicle, journal and develop the idea. And find the right angels who want to help, etc., anyway, I’d waited for awhile before I started asking around for help with the camera work, with the intention of shooting while I was doing the normal daily stuff of everyday. Rather than bring in a cameraman, I just began shooting some footage of myself and Michael making spiral noodles, which also acted as a quasi-impromptu ad for the Present Moment Cafe (which I love), as well as giving me the opportunity to fulfill my life-long dream of having a cooking show… well maybe not lifelong dream, but it’s been on my mind for a lot longer than youtube has been around, so I figure, hey, everybody else is doing it, so why can’t I? I’d posted it previously, find it here. I intend to shoot more video of Michael and our activities, but there is so much going on, I can’t even begin to tell you. I’ll attempt to keep this about Michael, while knowing that my stuff will creep into the blog, all of our family and financial issues, etc. play into our quality of life, and hence Michaels development. I’ll strive to keep it relevant.
I’d like you all to know that I think he is doing amazingly well. We’re expecting a new wheelchair for him within the next few months, and that’s a blessing from Medicaid. I will be starting a fund for some kind of trainer/walker type of device if I can’t get it funded thru Medicaid or Childrens Medical Services. I would like to have one for him today, but I can’t say that the physical therapist would say he is ready for it. I honestly don’t even know if they have that in mind for him so it’s another thing for the list of things to do… and so it goes…
Two Brains 